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Disability Inclusive Messaging: What is Inspiration Porn?

August 23, 2018

Man in wheelchair with text that reads "Inspiration?"We’ve all seen people with disabilities in movies or commercials where the music and imagery make them seem either super human, brave or courageous.  This usually follows themes such as: tragedy to triumph, some sort of athletic fete, or getting into the ‘in’ crowd.  The word you’ve heard, and likely have said, is INSPIRATIONAL – the most over-used word to describe people with disabilities. We’ve all heard some variation of these messages: ‘People with disabilities are such an inspiration.’ Or, ‘When I see people like that, it makes me realize I have nothing to complain about.’ Many companies default to this type of messaging, which the disability community has categorized as “inspiration porn.” While well-intended, these types of portrayals can spark significant backlash from the disability community and its supporters.

So, what is ‘inspiration porn?’

Inspiration porn is used to describe society’s tendency to reduce people with disabilities down to objects of inspiration. This is most often displayed through images, videos, or feel-good articles that sensationalize people with disabilities.

Where did this idea come from?

The concept of “inspiration porn” emerged around 2012 from an editorial and subsequent TEDx Talk by late disability rights activist, writer, and comedian, Stella Young. Young’s 2014 Ted Talk, entitled, “I’m Not Your Inspiration, Thank You Very Much,” focused on popular social media memes of people with disabilities, with captions like, “Before you quit, try!” and “The only disability in life is a bad attitude.” More often than not, these images include people with disabilities doing everyday activities, like coloring or rolling down the street in a wheelchair. “These images…are what we call ‘inspiration porn,’” shared Young. “And I use the term ‘porn’ deliberately, because they objectify one group of people for the benefit of another group of people. In this case, we’re objectifying disabled people for the benefit of nondisabled people.” Although these images are designed to motivate and inspire able-bodied people, as Young explained, they are degrading to people with disabilities. The goal is for people without disabilities to think, “Wow! I thought I had it bad, but it definitely could be worse.”

How can you identify ‘inspiration porn?’

When it comes to identifying whether an image, video, or text could be considered inspiration porn, look for these characteristics:

  • People with disabilities are objectified – In inspiration porn, people with disabilities are not represented as people, but as objects. Captions such as, “What’s your excuse?” or “Your excuse is invalid,” use people with disabilities as tools to guilt able-bodied people into doing or achieving more.
  • People with disabilities are devalued – In inspiration porn, people with disabilities are generally praised for commonplace activities (like getting dressed or sitting at the beach). This makes it seem like people with disabilities are not capable of the same level of achievements as their able-bodied peers, or that able-bodied people should be doing a lot more (e.g. “If they can do it, I have no excuse!) Also, it implies that disabled lives aren’t worth living. Statements like, “You’re so brave. I don’t know how you do it,” send the idea that people with disabilities have it so bad that simply existing is an achievement.
  • People with disabilities are depicted as the “problem” – Inspiration porn focuses on portraying visible disabilities as problems that need to be overcome. This overlooks the idea that people with disabilities encounter access barriers, both physical and attitudinal, that are really the true problems.
  • Able-bodied people are portrayed as heroes for simple, human acts – You’ve likely seen images or heard stories about “heroic prom-posals,” where able-bodied teens ask their peers with physical or intellectual disabilities to prom. One picture even shows a boy offering a corsage to a wheelchair user as he asks her to prom, with a caption that reads, “He asked her to prom in her condition. Like and Share = Respect.” Many media stories and images praise able-bodied people for doing things for people with disabilities that really should not be considered heroic or special. Other stories have gone viral that include able-bodied students “giving up” their homecoming court titles for their disabled peers, or people in restaurants helping wheelchair users access their food. None of these acts should be considered heroic. They should be considered human.

Can people with disabilities be considered inspirational?

Categorizing some disability-focused messaging as inspiration porn doesn’t mean that people with disabilities can’t and don’t do inspiring things every day. People with disabilities are starting their own businesses, completing high levels of education, winning significant sporting events, fighting on the front lines for their rights and those of others, and so much more. The problem with inspiration porn’s messaging is that the inspiration is watered down merely to a person having a disability. That, in itself, should not be considered the source of inspiration.

Could your message be perceived as inspiration porn?

If you’re trying to figure out if an image, video, or other media message could come across as inspiration porn, simply ask these questions…

For an image of a person with a disability:

  • If a person with a disability was not doing this activity, would it still be inspiring? If an able-bodied person were completing this task, would it still be considered brave or courageous?

For an image of an able-bodied person interacting with a person with a disability:

  • If two able-bodied people were having this interaction, would this be considered extraordinary? Would it be “heroic” or special?

If your answer is no to any of these questions, then don’t share it. Rework your angle. Instead, focus on the truly extraordinary achievements of people of all abilities.

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Tags: disability inclusion, disability messaging

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Need a Ride?

December 15, 2017

By Joan Leotta

Malcolm Glenn

Malcolm Glenn, Uber spokesperson and Strategic Partnerships Manager

Need a Ride? The founders of industry wunderkind, Uber, believe that the answer to this question is a resounding “yes,” heard from people of all abilities, all over the world.  As the ride-sharing platform continues to expand, the fundamentals of the company blueprint remain unchanged. Exciting inroads have been made to connect Uber to people with disabilities—mobility and otherwise – as both riders and drivers. To better understand the company’s evolution in accessibility, SMG interviewed Malcom Glenn, Uber spokesperson and Strategic Partnerships Manager.

SMG: When did Uber integrate accessible transportation into its business model?

Glenn: Accessibility has been a part of our platform since the beginning. We certainly didn’t start as a company with the mission to deliver transportation to everyone, but over time we’ve realized that there’s an amazing appetite for transportation from many communities for which transportation has been a barrier – including people with disabilities. In the last couple of years, we’ve really started to make internal changes to create a renewed focus around accessibility, creating specific teams and accessibility-focused roles, making significant improvements to the platform, and extensively engaging with members of the disability community to get feedback and learn where we can improve.

In the two years since I’ve joined the company, I’ve been heartened to see how much of a focus this has been across all functions. We still have a lot of work to do, but I think with continued engagement with the community, we’ll continue to find the best solutions and ultimately come that much closer to fulfilling our mission of providing reliable transportation for everyone, everywhere.

SMG: What accessibility options are available on your app?

Glenn: Using Uber is really two different experiences; first, it’s interacting with the app (from both a driver and a rider perspective), and second, it’s interacting with another person in the real world (again, as both a rider and a driver). For riders who are blind or have low vision, we’ve made the app accessible with VoiceOver iOS, Android TalkBack, and compatible with wireless braille display. We’ve also taken significant steps to provide drivers with information about their obligations to transport riders with service animals. Audio is not needed to use the Uber app, though assistive technology such as visible and vibrating alerts can help riders who are deaf or hard of hearing.

There are now thousands of deaf and hard of hearing drivers on the Uber platform in the US who are providing more rides per month on average than hearing drivers. Drivers who are deaf have collectively earned well over $10 million, after we made changes to the app a few years ago that allows drivers to self-identify as deaf or hard of hearing. This unlocks features that improve the experience for both drivers and riders. For this work, we were recognized last year by the Ruderman Family Foundation as one of 18 companies leading the way in supporting people with disabilities.

When it comes to riders with mobility needs, we’ve launched our UberWAV (wheelchair-accessible vehicle) in many US cities, connecting riders with drivers in cars equipped with ramps or lifts. UberWAV is currently being piloted in several US cities using a variety of models – everything from working with commercial partners to taxi providers to leasing/rental models. A more in-depth look at our accessibility offerings is at https://accessibility.uber.com/

SMG: Did Uber consult with any disability organizations to develop the Uber WAV program?

Glenn: Working with disability organizations has been paramount to growth of all of our accessibility offerings, including UberWAV. We’ve talked extensively with various national and local organizations about our different UberWAV models, and their feedback has helped inform our getting pilots out onto the road. The leading organizations representing blind people were also integral in helping us improve app accessibility and get into place a robust service animal policy. Finally, we partnered with the Communication Service for the Deaf, the largest deaf-led nonprofit in the United States, to expand opportunities for deaf men and women. We’ve also worked with members of the deaf community including the National Association of the Deaf and Telecommunications for the Deaf and Hard of Hearing (TDI) to design and implement a series of fully optional product capabilities to improve the driver experience.

screeshot from uber accessibility site showing an image of an Uber driver assisting a rider in a wheelchair into an accessible vehicle

SMG: At present, we see WAV only available in NYC, DC, Chicago, and Portland. Are there plans to expand it to other cities? If so, which ones?

Glenn: In addition to those cities, we’ve recently launched pilots in Philadelphia, Boston, and Toronto, and additional WAV options exist in cities like Austin, Houston, and San Francisco, not to mention internationally in places like London and Sydney. We’re always looking for new partnerships that can help expand the number of cities where UberWAV is an option.

SMG:  Can you estimate the percentage of Uber riders who require accommodations for Deaf/HoH, Blind/Low Vision, and Limited Mobility?

Glenn: Because we don’t ask for this information from riders, it’s very difficult to estimate the number of riders who have disabilities. But more than 10 million rides take place on the Uber platform every day all across the globe, and we regularly receive feedback from riders and drivers that leads us to believe that a sizable number of both riders and drivers with disabilities are benefiting from the platform.

SMG: What are the limitations for WAV when a rider has a wheelchair? Does WAV only cover manual wheelchairs? How do you address power chairs and scooters?

Glenn: All drivers are expected to accommodate riders using walkers, canes, folding wheelchairs or other assistive devices to the maximum extent possible. Because the nature of the Uber platform in most places is people using their own vehicles, driving when and where they want, we look to form partnerships in order to have vehicles on the platform that can accommodate power wheelchair users and larger scooters. These are the users that benefit most from our UberWAV service, as previously mentioned. (Read more about what Uber is doing to accommodate riders with mobility disabilities.)

SMG: Does the company require a rider to input specifics about how much assistance a wheelchair user will need?

Glenn: Riders do not input information about accessibility needs; in fact, drivers only see a few pieces of information when they’re matched with a rider – the rider’s first name, the rider’s current rating (out of 5), and the rider’s current location. (Drivers are also notified if the rider is going to a location that is expected to be at least 45 minutes away.) It’s important to minimize the information drivers receive in order to remove any conscious or unconscious bias, though we do encourage riders to communicate with their drivers about any identifying information that they deem relevant. Most riders with disabilities can be accommodated by any one of our products, and we encourage riders with power wheelchairs to request the UberWAV or similar service where they’re located.

SMG: Recently, your company was accused of not being accessible enough, especially for people with limited mobility issues. Can you explain what the company has done to address the issue of physical barriers?

Glenn: We certainly haven’t always gotten these things right on our platform, and much of the criticism in the past has been  justified. We started out only offering expensive black car rides and over time we’ve evolved to a much more ambitious mission to make a product that everyone can use. So that’s meant lots of community engagement, finding partners who can help us expand the nature of our model, and really focusing on what people need. Publicly stating our commitment to accessibility has helped, and we need to continue to improve how the platform serves users with physical disabilities. Continuing the lines of dialogue is key in working towards that.

SMG: How many Deaf/HOH driver partners does Uber have?

Glenn: We don’t know exactly how many deaf or hard of hearing drivers we have on the platform, because  the value of creating features for deaf drivers is that many hearing drivers have recognized the benefits and activated those features, too. It’s a great example of the usefulness of universal design – building products that work for everyone means that people with disabilities and without disabilities all have a better experience.

SMG: Has the company placed focus on disability inclusion and employment at headquarters and in staff offices?

Glenn: Disability inclusion has been a priority for us, both from the perspective of making our platform accessible as well as making sure we’re including people with disabilities in our employee population. This year we’re proud to have participated for the first time in the Disability Equality Index, a joint venture by the American Association of People with Disabilities and the U.S. Business Leadership Network. The DEI helps make businesses more inclusive for people with disabilities, and we look forward to working with other organizations in this field.

One of the benefits of Uber is that we’re very decentralized as a company, meaning that city teams are empowered to build relationships with local organizations and structure their offices in a way that’s reflective of the diversity of the cities they serve. That’s been a real opportunity to see innovation around inclusion come from many different parts of the company and many different geographies. Our diversity and inclusion team and many other folks in headquarters are leading the charge on lots of our disability inclusion work, but I love seeing people in other functions and in offices across the globe contributing to making our company as diverse and inclusive as possible.

SMG: Uber’s mission statement says it focuses on six core areas relative to accessible transportation: Efficiency, Ease, Reliability, Accountability, Responsiveness, and Economic Opportunity. How are these being implemented throughout the organization?

Uber: These areas are at the core of the experience we want all of our riders to have, whether they are riders with disabilities or riders without disabilities. Efficiency, ease, and reliability are at the core of the product, and one of the key value propositions for using Uber instead of other options: it’s efficient and easy to do everything from downloading the app, inputting your information, and ultimately requesting and completing a trip. Accountability matters in terms of making sure that issues with drivers are minimized, and when they do occur there’s a concrete mechanism in place to deal with them. Responsiveness, unsurprisingly, is necessary to have true accountability.

Finally, economic opportunity is the reason that  drivers, continue to decide to drive with Uber. One of the unanticipated aspects of Uber when the company started was how many people had a need for reliable transportation, but we also hadn’t anticipated how many people were looking for flexible work opportunities. To the degree that we can continue to provide people with those opportunities, we’re doing our job.

SMG:  How does Uber determine which transportation partners it engages with? How does this make consumer experience seamless for passengers with disabilities?

Uber: We take feedback from advocates, have exhaustive conversations with potential partners, and look closely at the assets they have to assess whether they’re a fit for our platform. Whomever we choose as partners, we’re committed to making sure the experience is the same across our various products. The experience should be seamless no matter which product you’re using, and our partners have to be able to help in providing that experience.

SMG: Your guidelines for drivers are very comprehensive. In addition to those guidelines, are there any hands-on classes for drivers to help them understand people with disabilities?

Uber: All drivers are provided extensive materials when they partner with Uber, and UberWAV drivers receive additional, more extensive instruction. We also have a product available in more than 40 cities around the world, UberASSIST, that is designed to provide people who would like a helping hand with additional assistance. With UberASSIST, top-rated driver-partners may obtain independent training from third-party organizations to assist riders into vehicles.

SMG: What are your plans for making Uber even more accessible in the future—for both riders and drivers?

Uber: We’re always thinking about how we can improve – and we know we have lots of ways in which we can do so. We’re always looking to increase the number of deaf and hard of hearing drivers on the platform, decrease the number of issues with service animals, improve app accessibility and increase the number of places where UberWAV exists, as well as improve = the reliability of the product in the cities where we operate.

We appreciate the opportunity to talk about the work we’re doing, how we’re thinking about improving, and to acknowledge that we haven’t always gotten this right. There are newfound efforts across the company to make the platform as accessible as possible, and we look forward to engaging with the community in order to truly get this right.

SMG: Thank you, Malcom Glenn and Uber!

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Tags: accessibility, Malcolm Glenn, Uber, Uber WAV

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Target Scores Bulls-Eye Again

December 13, 2017

By Joan Leotta

examples of Cat and Jack adaptive clothingLast summer, Target launched the children’s clothing line, “‘Cat & Jack,” a fun blend of creativity and functionality designed to meet the needs of modern families. This past fall (2017), Target expanded the line to include a selection of stylish adaptive pieces for toddlers and kids living with disabilities.

In describing this innovative launch, Julie Guggemos, senior vice president of Product Design and Development at Target, stated, “It’s our goal at Target to always make sure we have products that fit our guests’ needs, and all at a reasonable price point. We heard from our guests – and members of our own team—that there’s a need for adaptive clothing for kids that is both fashionable and affordable, so we set out to create exactly that.” She added, “since launching sensory-friendly apparel earlier this year and receiving such positive guest feedback, we’re now focused on continuing to evolve and expand Cat & Jack to meet the needs of even more of our guests.” Target spokesperson Meghan Roman further explained the vision behind the new line of clothing and the role Cat & Jack plays in the company’s overall commitment to shoppers with disabilities.

 

SMG: What made Target aware of the need for adaptive clothing?

Roman:  Target heard from real kids and parents – and members of their own team – that there’s a need for adaptive clothing for kids that is both fashionable and affordable. It all started when Stacey Monsen, a design director for AVA & VIV, Target’s own plus size line brand, and her teammates saw an opportunity to design pieces that are more accommodating for all guests–including their own kids. With this insight, Target set out to introduce a limited selection of sensory-friendly and adaptive kids’ clothing, within Cat & Jack, that’s affordable and offers kids stylish options to feel comfortable and confident enough to take on the day. Since the product launch last year, real kids, including those with sensory processing sensitivities, have played a key role in the development of the Cat & Jack brand. The feedback and insights Target gathered from this unique demographic were so invaluable that we have continued to tap kids from season to season to ensure we are meeting the wants and needs of our guests.

SMG: What items are available now?

Roman: The adaptive assortment features 40 items for boys and girls, including puffer jackets, long-sleeve tees, short-sleeve tees, hooded sweatshirts, leggings and bodysuits. Cat & Jack’s selection of adaptive apparel features details like outerwear created with zip-off sleeves and side and back openings to help make dressing easier for kids who are lying down or sitting. We also offer footless sleepwear to minimize discomfort for children who have sensory processing sensitivities or for those who wear additional supports on their legs and feet; we carry clothing with hidden openings that allow for abdominal access as well as diaper-friendly leggings and bodysuits.

SMG:  Are (and were) disability organizations and people with disabilities involved with developing and marketing this line?

Roman:  In addition gathering feedback from our guests and members of our own team, Target’s design team met with several organizations such as Pageant of Hope (a pageant for girls with special needs and challenges), Mind Body Solutions (a non-profit specializing in adaptive yoga), The National Federation of the Blind Minnesota and The Minnesota Autism Center, a group which facilitated our understanding of how clothing can help meet the everyday needs of children with disabilities and sensory processing sensitivities.

SMG:  Are the clothes available online, in stores or both? What are the sizes and price points?

Roman: The Cat & Jack adaptive apparel assortment is available exclusively on Target.com. Based on the current brand styles, Target’s internal design team created the 40-item assortment with features like side and back snap and zip closures and hidden openings for abdominal access, all in an effort to make getting dressed easier for everyone (kids and parents!). Cat & Jack adaptive apparel comes in sizes 2T-5T (Toddler) and XS-XXL (Big Kids). Prices range from $4.50 to $39.99, with most items priced at under $19.99.

The Target.com website boasts a unique online experience with online sizing tools meant to make it easier to find clothing that fits the specific needs of children. The online experience also showcases the design attributes and provides inspiration of how to mix and match the styles.

SMG:  Cat & Jack is available exclusively for children right now. Will adult clothing be available at a later date?  

Roman:  Yes, the line is only for children at present. Target will continue to evaluate all of our apparel assortments from kids to adults to ensure that guests feel welcomed and inspired by our products.

The best way to summarize our plans for the future of Cat & Jack is to quote Stacey Monsen, the Target design person who initiated our involvement in this line:  “The Target team has immense passion and collective knowledge, and I love that we’re using it to develop products and solutions that will change people’s lives. My goal is to keep being an advocate, for my daughter and for others.”

 

Cat & Jack products are available now on Target.com.

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Tags: adaptive clothing, Cat & Jack, target

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Disability Market Consultation Calls | July 2017

July 19, 2017

Disability Market Consultation Calls presented by Solutions Marketing Group

Many organizations have mastered marketing, advertising, customer experience and employment for multicultural segments, but don’t demonstrate high-level insight and expertise that effectively reaches people with disabilities, their families and friends. It is mind-boggling that a market of 56 million people, with over $1 billion in disposable income to spend, isn’t a priority for most organizations.

In the past, executives have shared reasons they’ve not taking a deeper dive to understand, penetrate and retain the market.  Any of these sound familiar?

  1. ‘We know we should do more, but aren’t quite sure what to do, or how to do it.’
  2. ‘My team was inspired during a disability sensitivity training but there hasn’t been any actionable follow-up.’
  3. ‘We just don’t have the budget this year to spend on integrating the disability market into our overall strategy.’
  4. ‘The disability market is so large, and many people don’t disclose that they have a disability. How do we identify and target specific segments?’

If this sounds like conversations you’ve had, I’d like to talk with you about closing the gaps.

During the first week of August, I’m offering free, 30-minute Disability Market Discovery Sessions (DMDS) to discuss and answer questions you and your colleagues may have about effectively employing, marketing to, or providing an exceptional customer experience to the disability market. My goal is to provide you with value for your organization to implement before 2017 comes to a close.

During each session I’ll help you identify what you’ve done, identify opportunities to make your organization more disability inclusive, and develop actionable steps.

This offer is for large and small businesses, as well as non-profits and government agencies.  Disability Market Discovery Sessions are no cost to you, and scheduled on a first-come, first-served basis.  To sign up, or if you have questions, contact Celeste Beaty. I look forward to speaking with you soon!

Warm best,

Carmen Daniels Jones

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Happy Birthday ADA!

July 13, 2017

President George H.W. Bush signs the Americans with Disabilities Act in 1990.

President George H.W. Bush signs the Americans with Disabilities Act in 1990.

While the country celebrated Independence Day on July 4th, many of us in the disability community will celebrate a second independence day – July 26th – which marks twenty-seven years since the Americans with Disabilities Act (ADA) became law.  I was at the South Lawn of the White House that sunny day, historic day.  I was a relative ‘newbie’ to the disability community, and worked as an Independent Living Counselor at the Peninsula Center for Independent Living in Newport News, Virginia.  My agency advocated for the ADA’s passage, in the Commonwealth and also on Capitol Hill.  At that time I didn’t fully understand what advocacy was but I was doing it!  This definitely laid a solid foundation for me to understand the importance of disability rights.

After President George H.W. Bush boldly stated, “Let the shameful walls of discrimination come tumbling down,” I heard cheers and saw tears from my elders who fought long and hard to level the field.  It knew it was a momentous day, based on the reaction of the crowd, but at that time I had no idea how this law would impact my life, as a wheelchair using, paraplegic.  The ADA’s imprint is felt in all sectors of business, and state/local government, and enhances life for 56 million people with disabilities and their families.

Because of the ADA:

  • People with disabilities can present their abilities and skills, by applying for jobs with private sector, state/local government employers, and not be discriminated against.
  • I access buildings with ramps and elevators.
  • My Blind/Low Vision friends are able to use Braille or large print menus at restaurants.
  • I can purchase tickets for Amtrak’s Auto Train and travel to Florida, in an accessible sleeper car.
  • People with limited mobility have the freedom to rent cars, with hand controls.
  • Deaf and Hard of Hearing people can go the movies and use captioning devices.

And, these are just a few of the practical and tangible ways the ADA has changed the lives of people with disabilities in the U.S.  

In the nearly 31 years since I’ve become a person with a disability, and the 20 years since founding the Solutions Marketing Group, the biggest change I’ve seen since the ADA’s passage is that disability inclusion is becoming the norm, and no longer the exception!

Happy Summer!

Carmen Daniels Jones, SMG President

PS: If you need ideas for your organization to commemorate the Americans with Disabilities Act, visit the ADA Anniversary Tool Kit.

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Quick Facts

The disability market consists of 56M people, representing an annual disposable income of $544 billion.

The disability market is more than twice as large as the tween market (20M), and has almost 3X the disposable spending power ($180B).

According to the U.S. Census Bureau, of the 69.6 million families in the U.S., 20.3 million families have at least one member with a disability.

A University of Massachusetts Boston survey found 92% of consumers felt favorably toward companies hiring people with disabilities; 87% prefer to do business with such companies.

By the year 2030, 71.5 million Baby Boomers will be over the age of 65 and demanding products, services, and environments that address their age-related physical changes.

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